In April of 2013 Sheila's big toe went numb for no apparent reason. The numbness and pain quickly spread until her entire leg below the knee was rendered useless. Sheila was diagnosed with CRPS in May and passed away on July 29th, 116 days after her toe first went numb. She was 32 years old.
CRPS is a condition that often goes undiagnosed for months or even years. Symptoms include changes in skin temperature and color, softening and thinning of bones, muscle twitching and severe pain.
The McGill Pain Index ranks CRPS as the highest level of pain for any chronic condition. The pain Sheila experienced was so severe it prevented her from wearing shoes, socks or pants. She couldn’t submerge her leg in water and even a light breeze could bring her to tears.
There is no cure for CRPS.
It is estimated that there are between 1.5 and 3 million people suffering from CRPS in the United States alone, and most people have never heard of this disease. Sheila would wish that people become more aware of CRPS. For more information or to make a donation to fund research please visit www.rsds.org.
Sheila Elizabeth Warren Hert
- Born June 8th, 1981
- Mother, daughter, sister and wife
- Sadly left us on July 29th, 2013
"I would run! I would run as far as I could, to the middle of nowhere, and then run home. Or, I would ride my mountain bike in Moab, all day, everywhere possible. Or I would swim. I'd swim laps, until my muscles were so weak, I couldn't stand."