My RSD Story and RSD/CRPS Support for Survivors Middle TN. & Fort Campbell, KY.
In 2008, law enforcement officer and game warden, Omega Kimoto, was injured in the line of duty while working for the state of Alabama. Following the incident, she began to develop what is known as Chronic Regional Pain Syndrome or Reflex Sympathetic Dystrophy (CRPS/RSD) in her right shoulder. Unaware of the presence of this condition, the nerve malfunction began to spread all throughout Omega’s body, causing her excruciating pain like she had never experienced before. By the time she had received an accurate diagnosis, it was too late. The doctors informed her that this condition was something she was going to have to live with for the rest of her life, as there are no known cures for CRPS/RSD. This became a very trying time for Omega and her husband, Kito, as they began adjusting to life with CRPS/RSD. After relocating to the Clarksville/Ft. Campbell area, Omega began the search for a support group with which she could join, in hopes to connect with other individuals who were experiencing the same pain and anxiety as she was. To her disappointment, she was unable to find one that catered to the middle Tennessee region. So, with the encouragement of her psychologist and the desire to fill a well-purposed need, Omega created her own online support group where physicians,medical professionals, friends and family members, as well as those directly affected by CRPS/RSD could provide support and guidance to one another through social media outlets. The group currently sits at 61 members and can be located at: facebook.com/groups/tncrps.
After relocating to the Clarksville/Ft. Campbell area, Omega and Kito were alone and without help from any of their friends or family members. It became a juggling act for the couple, balancing cooking and cleaning with countless doctor’s appointments and emergency room visits; not to mention Kito’s struggle with leaving Omega home alone while he worked full-time at Ft. Campbell. They were able to receive help through a local charity that provided the couple with a CNA that came to visit a few times a week, helping with daily chores as well as transportation to and from doctor’s appointments. Because of this help, Omega and Kito were able to breathe easier, knowing that someone was able to care for Omega in the absence of her husband, who was already carrying such a heavy load. Right then, Omega promised herself that if she ever had the ability to provide a similar service to others experiencing CRPS/RSD, and Arnold Chiari Malformation that she would do so in the hopes that it would make the lives of others a little less difficult, especially during trying times like she and her husband were experiencing. Early diagnosis, treatment, and education are all important components of the group.
If you know of anyone suffering from RSD/CRPS in the areas of Tennessee, Western KY. or any of the adjoining states please feel free to pass along our information and our facebook email .